- Event Time 7:00 pm-10:00 pm
- Event Start Date March 3, 2017
CHEERS FOR A CURE
Please join us at Cheers for a Cure, a fabulous event to benefit the International FOP Association and the University of Pennsylvania.
Where: Sixty State Place, 60 State Street, Albany, NY
When: Friday, March 3, 2017 , 7 PM – 10 PM
Imagine being 13 years old, a great student and athlete, then finding out that you have a disease that slowly calcifies every muscle and connective tissue in your body, encasing you in a second skeleton. This is the reality that Ashley, a child in the Capital Region, is now facing upon being diagnosed with Fibrodysplasia Ossificans Progressiva (FOP). FOP is one of the most rare and debilitating genetic diseases. Currently there is no cure for this condition, but we are getting closer! It is our hope that Ashley’s broader community can rally behind her so that the money brought in can go directly to finding a cure.
To purchase tickets and sponsorships please go to the IFOPA Website: Cheers for a Cure